Yo Tsuchiya

本稿の目的は,障害をもつ人と親への聞きとり調査から,介助における家族の関係性及び,その際に生じる特有の問題を考察することである.聞きとり調査から次のことを明らかにした.第一に,親の感じる労力的な負担が精神的負担を生じさせ,関係性の悪化を招いていた.第二に,母親が子どもの介助をすべて担う状況において,力関係が生じていた.第三に,とりわけ異性の親と子の間で身体に関する摩擦が生じていた.第四に,親が子どもの意志に介入したり,お互いにある行為を要求しあうことによる摩擦が生じていた.考察の結果,身体に関わる問題,家族規範に関わる問題が,介助を担う存在が「親」であるからこそ生じる問題であることを示した.

Recent family studies called for "subjective approaches" which highlight the family being recognized and interpreted by people as actors. Few empirical studies have made use of subjecttive approaches to study the family mainly due to methodological problems. The aim of this paper is to suggest a life history and subjective approaches to describe the family with systemically disabled persons. From narrations of disabled persons concerning their families, this study shows that their subjective family is constantly affected by passing of time or by some opportunities to their life history. Additonally, the reality of the family is constructed by mutual permeance between "subjective" and "social" realities.The subjective approaches to study the family will be effective means to demonstrate the power around the family.